Showing posts with label metastatic breast cancer. Show all posts
Showing posts with label metastatic breast cancer. Show all posts

Wednesday, April 2, 2025

4th of Nisan

Passover or Pesach, this year, starts on the night of April 12th to the 20th. I’m going to do it this year. The seder and ‘diet’ during the holiday. Ashkenazi Jews have a more restrictive diet than Sephardi Jews during the holiday. In addition to no leavening (from 5 types of grains: wheat, barley, oats, rye, and spelt), which is chametz, we don’t eat kitniyot. Kitniyot (lit. ‘small things’) are legumes, rice, corn, and other foods considered similar to grains. Even mustard is on the list. I try to keep it as close as I can. There’s a surprising amount of corn products in things.


Seder lit. means ‘order’, it’s a ritual dinner that goes in a certain order. I didn’t do a seder for a couple of years after my fall and cancer diagnosis. I think this is my 3rd year getting back into it. I’ll be the leader at our family one. It’ll just be my parent and I. It’s a bit sadder when it’s just me. (Had that for a couple of years.) We used to go to a friends’ place for the 2nd night. Most people do (or go to) seders on the 1st 2 nights. The hostess had an accident (I don’t remember exactly what happened) and got brain damage from it. So, they haven’t hosted one since. They might have stopped it when Covid came around, too. I kind of miss their seders. There were a lot of people. I got to see their dogs. There was interesting food. I usually was the youngest one, so I had to ‘search’ for the afikoman. Afikoman is a piece of matzo (cracker like unleavened bread) that’s been hidden. The kids have to find it. They usually get a prize of some sort. The best present I got, I think, was an illustrated Hebrew dictionary. (Most of the time it’s like $1 or something small.) The seder can’t end unless everyone eats a piece of the afikoman. It’s also the last thing that’s eaten. I think some strict families don’t sing or listen to music after.


I decided on the actual dinner things for ours. We’ll have the usual hard-boiled eggs and gefilte fish first. I got 2 jars of the fish, which will be nice to have during the week. Then, matzo ball soup. I got 2 jars of this. We’ll probably use all of the 1st jar that night. My parent wanted to make the roasted chicken. The last couple of years we’ve gotten it from one of the markets. It might be even better made at home. I thought having a salad would be a good side. Probably get a spring mix. I can put a few leaves from it on the seder plate. I was hoping to mix in shredded carrots and shredded cabbage. I think Safeway used to have those already prepared. I’m hoping they’ll still have that. Craisins or dried cranberries would be great in the salad, too. I already found a good looking dressing and got it. It’s a garlic vinaigrette. I got quite a collection of desserts. Double dipped chocolate macaroons, almond macaroons, fruit slices (candy), chocolate seder plate (it looks impressive to me. Hopefully it’s in one piece), and Osem's chocolate chip Pesach cake (they make amazing Pesach cakes. I think they crushed this one, sadly). I bought 2 boxes of matzo. Even though I’m the only one that will eat it after the seder, I’m going to use it a lot. Matzo pizzas, matzo with charoset (fruit, nut, and wine mix, which the one I bought is like a jam) on it for a snack, matzo sandwiches (almond butter and charoset, egg salad, and tuna salad), and more. I decided not to try to roast an egg this year for the seder plate. I’ll just put a hard-boiled egg on it. I’m not sure how many hard-boiled eggs I’ll need for sandwiches for the week. Safeway has a couple of brands, and they all have 6 to a bag. Maybe if I want more I can just go back to get more then. We’ll put an orange on the seder plate again. It represents marginalized Jews. Like LGBTQ+ Jews, Jews of color, etc. We’ll have to get parsley for the plate, too. I noticed we have ‘extra hot’ horseradish. We could use that for the plate and the little matzo sandwich we have during the seder part just before dinner. I hope I can handle a tiny piece of it. I’ll get sparkling grape juice for my 4 cups. I don’t drink alcohol. I think I’ll get 2 bottles. I can have the rest during the holiday.


I got 3 bags of Pesach noodles. They didn’t have any at the markets, and they only came in 3s on Amazon. (I got most of the Pesach stuff from there.) I love those noodles. It’ll definitely last longer than the holiday. I’m going to try and find a good pasta sauce to have with it. Kind of hard to find without soy or corn products. I’ll have some cheese with it as well. I’ll use both the sauce and cheese with the matzo pizzas and noodles. I also found a premade roast chicken, potatoes, and carrots boxed meal. They say it can be used for camping. They say they’re kosher for Pesach. I might try more of them in the future, if I like it. I got bbq potato chips. That would be a nice snack. I got an herbal tea sampler. Most teas are kosher year round, but it was on sale in Amazon’s Pesach section. Hopefully it’ll be good. I thought a sampler would be nice. I can try a variety of them. This holiday is one of my faves, but it takes quite a bit of planning.


The main picture on the Jewish calendar is of an old French seder plate. It has the spots for each thing, each one is also in Hebrew and French. The outer part of the plate has all the sections of the seder in both Hebrew and French. That’s kind of cool to see. Most seder plates don’t do that. The other (secular) calendar has someplace in Scotland, I think. It has the Scottish flag. It’s of a sunset around some ruins.


I downloaded my ancestry . com data, and uploaded it to MyTrueAncestry. They supposedly do a deeper dive into how far back they go. My parent did it before me, and it looked interesting. It only took less than 10 minutes. It was free, although they show more if you pay for it. Not sure how accurate it is. A big percentage were Illyrians. I still don’t know much about them after looking them up. I’ll look at the other groups at some point. (A lot of them I don’t know much about.) Another big percentage were the Romans. I’m surprised by this one, but they got around, like the Vikings. I didn’t see any Viking in there, oddly. It had an era circle of what percentage of people were for each era. They also have a map, so you can see where they travelled around in certain eras. My parent also recently tried another DNA thing. Something that sequences your whole genome. I might be able to do that when they have a sale. It takes a while.


Went to Kettlefish for the first time on Saturday. There’s only 3 entrees I can have there: fish and chips, cod tacos, or Caesar salad with cod pieces. I got their cod tacos with coleslaw. The fish was really good. There were way too many things in the tacos, so most of it fell out. Even with eating the fish first, it was still too much. The pico de gallo tasted like it had curry spices. Interesting. The tacos also had too much lettuce. The coleslaw was interesting and good. They also had ice cream. I got a chocolate eclair bar. Reminded me of the strawberry shortcake bars. Just with chocolate. I might try their fish and chips next time.


I ordered quite a bit of meds lately. My primary doc’s ‘team’ also ordered 400 mg gabapentin. They want me to take it once 3 times a day. They think it might help me more than the 300 mg once 3 times a day dose. I had been waiting for my morphine 60 mg pills. I’d run out by Friday morning. (I take it 3 times a day.) I was so happy to get it today. It really cut it close. I also got the gabapentin. It was 90 days worth. I wanted it to be a 30 day one. I ended up with 4 huge full bottles of it. Too much. I barely had space for it and the other meds I got. (There were a few more.) I think the gabapentin was $16, but I wasn’t charged for the others. I thought it’d all be a lot more expensive. Maybe I’ve already hit the deductible or whatever it is.


Today I didn’t miss any of the Spanish sentences on Duolingo. Did 3 lessons. Finished a unit and my Spanish number went up to 62. Hit a milestone for my daily streak, which was 1,250 days. Finished all the quests for today. I’m 5th in the league. 


Someone tried to basically harass me on Shabbat . com. He sent weird messages and tried friending me twice. He seemed to only be there to look for a wife. He made quite a few false assumptions about me. I eventually just blocked him. Oddly, I noticed I haven't used that app for 3 years. I might get back to it. It's kind of like a Facebook for Jews. Including part of it where you can find places to stay and host Shabbat dinners. They got a dating part of it, which I never really used. Most people on there have been nice.


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Wednesday, February 12, 2025

14th of Shevat

It’s been a while. This whole past week was weird. I was supposed to get my hospital bed last Monday (on 2/3), and they were also supposed to ‘pick up’ my old hospital bed that day. The weather was really awful. We had gotten some snow and ice. It was so bad, my parent said the schools she works for were closed. The Apria driver did call me about postponing it, considering it was so bad out. He said he’d call me on Tuesday at around 9am or 9:30am. I never heard from him after that. The weather was bad for most of the week. Schools were closed most of week, except for Friday. That was a 2 hour delay. I have a feeling they didn’t call because of the weather. It was forecast to be really cold out this week. Not much snow in the forecast. It was ridiculous to be waiting so long. Especially with no word from them.


On Monday, they called me at around 12:30pm. I was going to call them after I had lunch. So, perfect timing. They had apparently called my parent just before me. I have her as my emergency contact. They have my info, but for some reason they’ve contacted my parent instead. It’s weird. It was like that with the previous bed. Anyways, they finally did it. They attached some of the old bed parts to the new one, which was interesting. The new one’s fully electric. Different than last time. Just a press of a button to have the whole thing go up and down. There was a crank with the old one. The family room looks really empty downstairs now. My bedroom looks more ‘busy’. I managed to get the hospital table where I wanted it. Parent helped a lot with bringing it upstairs. I almost had to throw it in my room. I can still get to the closet with it. Should be interesting to see what it’s like for bed baths. The bed itself is pretty comfy. 


I still need to dust more in my room. I wasn’t really using it as my room for close to 5 years. A little weird to get back to. I’ll vacuum it more and go through my clothes and other things. Hopefully I'll have the energy to do stuff like that. 


I ordered calendars last night. The previous calendars were stuck on December 2020. I got the Jewish calendar this afternoon. That’s pretty fast. It’s from the same museum that did my previous Jewish calendars. They showcase a different artifact (sometimes 2) a month. I don’t like the new packaging. They went without plastic with a slight overhang. I had to cut that off. They still have the Torah portions or parsha, phases of the moon, Shabbos lighting times, National and Jewish holidays (I think they even have things like Ramadan as well), and more. It’s usually a nice calendar. Last night, I also searched for a secular calendar. I was planning to get a chemical element one, like I had last time. That was a really cool one. Apparently they stopped making them in 2023. I looked for an herbs/spices one, which I had before. Nothing. Then I did a generalized search. They had a Pusheen calendar. I had one in the past and liked it. The problem was it wouldn’t get here until March, and I want it sooner. I was surprised with the sample that they even had Shavuot on there. That’s kind of rare for secular calendars. I found one that was called Passport to the World. It has pics of places from around the world. I think I had a calendar in the past with the same company. They’re French. They have French, Spanish, and English for everything. It might have pretty pics. I think that’s supposed to be delivered on Friday.


I also might look into getting a clock for my room. I already have an idea of where I’ll put it. I’d like it to not tick. I’m a little nervous about how to put it up on the wall. Maybe my parent can help me. I just want a simple one. I’m going to have to get rid of my stereo at some point. It doesn’t really work anymore.


My little TV is old (I think I got it just before I went to college in 2003), and it only plays my old Sega Genesis games. All the other channels don’t work. I want a new nice and small TV. I’ll take down my ace flag, and put it up there. Maybe have a sound bar underneath it. Maybe eventually get a game console with games. I think my parent got a Playstation for us, but it would be interesting to have something like that in my room as well. She can play with me, too. I have some ideas for the future in my room. It seems fun that way.


The Saturday before that Monday (the day I was supposed to get the bed) the Got Junk people came by. They were supposed to be here at 11am, but they came at like 10:30am. They took my bed, the headboard, and the stuff that was under the bed. I was nervous to know what was under there. I thought there would be like a ton of spiders, mice, or Rosie’s poop. None of that craziness. I found my certificate from when I ‘graduated’ from swimming lessons as a kid. Found a few of Rosie’s toys. She must have brought them there. I saved her fave big yellow ball and ladybug plush toy. It’s kind of an angry looking ladybug. I saw my old posters. There was a wooden slab. My desk used to be made of 2 short blue bookcases and a wooden slab/plank over it. I have a real one now. I think what I have now was my mom’s. I certainly didn’t need that huge piece of wood anymore. I’m glad they took most of it away. My parent, on Friday (I think), vacuumed the area that was underneath. There were a lot of dust bunnies and small pieces of debris. Now it’s even better. I didn’t have the energy by then to vacuum it myself. We had it ready for a while this way.


Last Saturday I also had a haircut appointment. I was worried the Got Junk people would take so long that I’d have to cancel it. Luckily, they were quick. They were done before around 11am. I got another buzzcut. A little cold for right now, but it’s so easy to take care of. I had a lot of grey or white hairs. Kind of surprised me. Yet again, she didn’t charge me. She does it because she feels that’s what she can do to help me. When she found out I had cancer, that’s how she felt about it. I feel guilty about it sometimes.


Afterwards, we went to Isla Bonita for lunch. I got their burrito blanco. One of my faves at other Mexican places, so I wanted to see what theirs was like. It was very good. Leftovers made for another great lunch.


After that we went to Starbucks. (I think we went home in between.) Apparently my parent had lost her wallet. The Apple Pay wasn’t working, so I paid for everything. A little difficult for me, considering I don’t get much through ssi.


After that we went to Walmart. I needed a surge protector and my parent needed Tums. I bought both of them, since Apple Pay didn’t work there. I needed the surge protector for my new all electric hospital bed, iPhone charger, and watch charger. The other outlet is for my lamp on my nightstand. So, it was another thing to prepare for the new bed. I’m surprised the iPhone charger works as well. It’s pretty old, but I haven’t used it in a long time. Hopefully it’ll work for a while. I think we might have gone to Petco, too. Rosie needed more cat litter. Apple Pay did eventually work there.


I tried to take a cramp med that my parent gave me during the week. Did it for 3 nights, and didn’t have any cramps those nights. It might interact with my other meds, so I decided to have it when I have cramps at night. That hasn’t happened yet. I’m unsure if it’s safe for me to take on a regular basis.


We decided to go out on Thursday. Kind of felt stir crazy. We went to Starbucks again, which I think I paid for it again. (We tried the Apple Pay again, and it didn’t work.) I tried one of their new sandwiches: pesto egg and mozzarella. It was really hot at first. It was good. The gingerbread latte wasn’t as great as I expected.


We went to Safeway for dinner stuff, and Central Market that night for dessert stuff. I think I got broccoli chicken Alfredo. I got a fruit tart for dessert from their new bakery area. My parent was able to use Apple Pay at both places. Thank goodness. I went through the self checkout and I had to tilt the fruit tart at a weird angle. It made some of the fruit pieces slide off.


We went to the Olive Garden for dinner Friday night. They actually had Apple Pay, and my parent had no problems with it. I got chicken and gnocchi soup, fettuccine Alfredo with broccoli, and tiramisu for dessert. There wasn’t enough gnocchi in the soup. I think I had like 3 in the whole thing. There was way too much broccoli in the fettuccine Alfredo. Like more than a head’s worth. The tiramisu was frozen in parts. Once I thought the cream/custard was like ice cream, it was better. Had half of the fettuccine Alfredo with broccoli and had the leftovers for lunch on Saturday. It seemed like quite a lot still.


Did weekly grocery shopping at Central Market on Saturday. Parent found some decent bananas. I got 2 dinners and 2 desserts. One being a broccoli and cheddar quiche, and the other dinner their mac and cheese. I had half of the mac and cheese Saturday night. Got a hazelnut chocolate cupcake from their new bakery area, and a cherry pie slice. The cupcake that night was a bit weird. The frosting/nuts/chocolate syrup was good, but the cake part had like an herb. I couldn’t place it. I got tired of having the oatmeal cookies, and got snickerdoodles this time. We also got hot dark chocolate. We still have small marshmallows, so why not?


Went to Safeway on Sunday. There’s a new flavor of the cereal I get. I normally get the maple pecan Honey Bunches of Oats. It’s one of the few cereals that doesn’t turn into tasting like sand. The new flavor is chocolate Honey Bunches of Oats. I thought about it. It would only be 3 more grams of sugar. I decided to get my usual, but I might try the new one soon. For a dinner, I got grilled chicken with green beans and mashed potatoes. It also has some garlic and herb butter. I added BBQ sauce to the chicken and the butter mostly on the green beans. I got tiramisu cake for dessert. There was a big one that was like 500 calories, and the one I got was 210 calories. I don’t need a lot. The chicken with BBQ sauce (it was one I haven’t had before) was really good, same with the rest of it. The cake is probably tasty, too.


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Wednesday, January 15, 2025

15 of Tevet

It’s been so long since I’ve actually cooked something. I think the cancer has made it hard to motivate myself to do it. Before my fall back in March 2020 (a month before I was diagnosed with cancer), I was getting back into it. It was fun. I thought I’d try to cook again this year. I might cook on Saturdays. I made Enchilada Pasta from a pin I found on Pinterest this last Saturday. I bought pre-diced white onions, so I didn’t have to do it myself. It really helped. I hate onions, but will eat them if cooked a certain way. The recipe called for yellow onion, but it probably doesn’t matter much. The onions basically disappeared, which was a plus. Good to just have the taste. It has ground beef. It really reminds me of Hamburger Helper that way. I’m not used to using taco seasoning and enchilada sauce. Both were interesting. There’s also low sodium beef broth, pasta, and cheese. The cheese is a blend of monterey jack and cheddar. The cheese was like magic. It thickened up a lot when I added it. The pasta was perfectly cooked. I thought it would be too long. You cook it in the enchilada sauce and beef broth (and the rest of the stuff except cheese) for 15-20 minutes. No extra pot that way. It was really good. Very zesty. It’s made quite a few more dinners during the week. They say it’s 6 servings, but I don’t measure them out. I just go by what I want. I gave myself a little too much Monday night. Felt really full, but I still have a lot left.


Didn’t go to the markets on Sunday, but went to Central on Monday. I’m running really low on what SSI was paying me, so my parent was nice enough to help me with it. I still haven’t heard from Social Security. Anyways, I got a smoked turkey and dill havarti sandwich for dinner. To have a little break from the pasta thing. I also got a slice of cherry pie. I had that as my last snack. I got more instant beef pho. Used one of the instant pho’s on Monday, so I replaced it with this. The bananas looked horrible. It must be bad weather or something, since they’ve looked bad the last few times. I forgot to get milk, so I’ve had cereal without it again. Got one of my fave Amy’s frozen meals: broccoli cheddar bake. Also, got their Country Cheddar one. It’s been a while since I’ve had it, but it sounds good.


I got my first box of Universal Yums. It’s on the UK. I think they do a lot more interactive things than Treats did. One of their emails beforehand had a list of British comedy shows. Each one has a youtube link (I think to playlists), so you can watch some of it. Another email had recipes. It comes with a map of the country with some highlights. On the back you can write how you felt about each snack. There’s a booklet. Much more in depth than Treats on this. They have more recipes, sayings, a music playlist, descriptions of each snack, tips on what to do and not do at a tea party or afternoon tea, and even nutrition info on each snack. There are also stickers. The snacks have been interesting, and I don’t think Treats had any of them before. There’s also a little Yum Bag, which is apparently full of 2 types of little things they found. They’re fudge and a caramel filled with liquid chocolate. (They actually highlight them in the booklet as well.) This one seems more interesting to me. I've tried everything except the rhubarb candy and toffee. The pickled onion potato chips (or crisps) were better than the cheddar potato chips. The candies were softer than I expected. The Millions Iron Brew flavor were awful. Worst thing so far. Reminded me of Nerds, but stickier. Not really chewy. Stuck to my teeth too much and I only had a few pieces. (Gave it 1 or 0 hearts, if I could.) Tried it today, and had the chocolate chip and coconut soft cookies instead. They were good, but had just a little too much coconut. I also got an email from them a couple of nights ago. They featured books from or about the UK. A couple of them sounded interesting and I might add them to my wishlist on Amazon (if they’re on there). They really seem to get into it. Oh, and they asked if I wanted to opt out of Valentine’s Day related stuff next month. I happily did that. I don’t really like the holiday. They said I’ll still get the country related emails.


Monday I did 5 or 6 lessons in Duolingo’s Spanish course. I wanted to finish all the quests and use the xp multipliers I got from finishing them. I did 3 lessons each yesterday and today. Finished 2 quests pretty quickly. Only had 1 mistake today. I’m 4th in the league. That’s pretty good considering how competitive they are in this one.


Watched Flow and finished Godzilla x Kong: The New Empire. Flow was really trippy. They got the cat movement/mannerisms correct. It seems like it was a metaphor for death. It was a world where humans had certainly been there, but they disappeared. Interesting how the animals interacted with each other. At times they almost seemed human.


The New Empire was kind of cool. Lots of big ‘monsters’. I like how Kong knows the humans are trying to help him. They fixed his tooth for one thing. (There was another thing the humans gave him, but that might be giving too much away.) Godzilla just seemed angry with everyone but Mothra. I like where he decided to sleep a couple of times. I think he didn’t even know why he was trying to supercharge himself with radiation until Mothra came out.


Went to Silver City last night for dinner. We (my parent and I) shared their pretzel appetizer. It comes with 2 pretzels, so we could each have 1. I ate half of mine. I got their Top Notch burger with coleslaw. It was pretty good. Had half of both of them. Those and the pretzel made a nice lunch today. I had their brownie for dessert. It had ice cream on top, hot fudge, caramel sauce, and a ton of whipped cream. Some chocolate puffs/chunks were on top of the whipped cream. It looked like a huge ice cream sundae. I didn’t have the whole thing.


Had a horrible leg cramp early yesterday morning. I was still in bed. It was so bad that it was spasming for a long time afterwards. I’ve been getting little ones lately, but this was the biggest one in a long time. Maybe I need my cyclobenzaprine dose increased. It’s a muscle relaxer, which has helped a lot. I’ll bring it up with my primary care doctor. Another thing is I’ve been occasionally bleeding from my nose. I don’t know if it’s just dryness or something more.


Figured out another way to organize my pills. It might make it easier. After each day, organize yesterday’s pills. So, I end up refilling it over time. Sunday I’ll end up doing 2 days worth. Once during the day, and once after I have my last batch of pills that day. That’s better than doing all of them at once. It takes time with each one. It won’t take nearly as long. (It also means I won’t need to refill one on Mondays.) I’ll just still go over my pills on Sunday to see what I need to order or get at CVS/Safeway. That doesn’t take much time. 


I got a billing statement today online from Kaiser Permanente. It was more than I expected. They're still using the insurance I get as a dependent, not the Medicaid version. If it were the Medicaid version, I don't think it would even cost me anything. The biggest thing was the CT scan. I kind of think they used my Medicaid for the meds I got earlier this month. They were still at no cost. Normally, if I haven't met the deductible yet, most are $10. Except for Ibrance and Symproic, being $50 each a month. I'd be happy if they are using it for my meds. Wish it was for the rest of it, though. I'm a little nervous about my Xgeva again. I don't know if it'll be covered by Medicaid, or they'll charge me. It's not a cheap med, even when covered normally. If I don't get it, I can easily break more bones. I don't know if I can put a pause on it anyways. I might just go through with it, see how much it is and use their monthly bill pay thing for it and the CT scan stuff. The benefits card will help for now. Hopefully they can switch me to the Medicaid one soon.


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Tuesday, January 7, 2025

7th of Tevet

I’m still waiting for Social Security’s decision on my SSI. I think they’re giving me until January 11th, but I think they might have finally made their decision before that. I sent papers to them like they asked me to. They suggested I hand the envelope to them at the office or mail it. Mailing it was easier for me. I’m not sure why it’s taking so long, since I sent it a while ago. I hope it gets to them, and they decide to approve me. If not, we’ll have to appeal it. I did recently get another notification that they still consider me categorically needy for health care stuff. That’s something. I think that’s the state, not on the federal level? I called them a couple of times. Each time I would be put on hold for over 2 hours. Too long for me. I don’t think they’d be able to help me either. If they didn’t get the papers, that’s not my fault. Where did it go, if they didn’t get it? It got me so worried at one point, I couldn’t sleep well. Now, realizing I can’t do anything more and they should have gotten it, oddly makes me feel a little better.


I called Access Bus for another ride. This time to my oncology appointment coming up on Thursday. That went smoothly. Except I forgot who I’m seeing. It’s someone who I haven’t met before. I don’t know what happened to Dr. Nik.


Had my CT scan last Thursday morning. I usually get both that and a full bone scan done in Tacoma. This was just the CT scan part and it was at KP’s Silverdale clinic. Much closer. I had to get up a little earlier than usual. (It’s bad enough I usually have to get up early to take a pill.) They told me not to eat 4 hours beforehand. They were going to do some bloodwork, but looked over my info again and apparently they didn’t have to. They wanted me there an hour early so I could drink the contrast before it. They didn’t tell me to take my clothes off this time. I just had to push my jeans down a little. I was really worried they wouldn’t be able to get an IV in. It was a big ordeal last time I had it done there. This time he got it in right away. He said I had rock hard veins, but it looked like a few good ones. I had a hard time breathing during it. We thought my arms would be up enough so they wouldn’t hit the machine, they did anyway. It wasn’t too bad this time.


The results were pretty good. Only thing that showed up were gallstones. No mention of lung nodules,  atelectasis (partial lung collapse), or fatty liver disease. Maybe my walks have helped?   


I was really hungry afterwards. I thought about going to the Oak Table. The parking lot was way too crowded, and it looked like we would have to wait a long time. So, we decided to go to Green Light Diner instead. I got their smoked salmon eggs Benedict without scallions and with hash browns. I was thinking of getting the Oak Table version, so why not try theirs? The eggs seemed almost hard-boiled instead of poached. They have herbed cream cheese along with their hollandaise sauce. There were capers, too. The salmon seemed thicker and there was more of it. It was pretty good all together. The hash browns needed just a little more salt. I ate the whole thing. I was that hungry.


Oncology called me yesterday and left a voicemail. They wanted me to get some lab work done before my appointment this Thursday. So, I had a blood draw yesterday for it. I knew I needed it soon, because it’s been a while. It went well. In fact, they said I had a beautiful vein. I got 2 results back yesterday. My alk phos was high, and my platelet count was high. That’s not normal for me. Makes me wonder what that actually means. Google is a bit scary when I searched for it on there. My cancer marker (which I got today) is the lowest it’s ever been. (Since they have kept track of it.) I think that’s a good thing.


It’s a new month today with my walking plan. My new outside walk is walking out of the neighborhood, to the Mormon church, through the greenbelt, next to the tennis courts and back. I plan to do inside walks occasionally too. Like when it’s too rainy out there. I decided to do 40 minutes inside today. When I know how long the new outside route will be, I can change it. If I had gone out today, the sun would have been in my eyes. I did 137 rounds inside. That’s a lot. Apparently, just over a mile.


I plan to start cooking again. I haven’t done it in a long time. A lot of the recipes I see on Pinterest look great. It’d be nice to try them. A lot of them have either cheese in it, or you can add it as like a garnish at the end. Some are truly without cheese. However, I think it’ll be fun to cook with it. Some of the recipes might last me most of the week. So, that’s also a positive. Maybe I'll do it for Saturday dinners? That sounds like a good time.


I did 6 Spanish lessons on Duolingo today. I usually do 3. I only missed one sentence. I flagged it because I think mine was just another way to do it. They have interacted with me in the past when I flag them. They say things like they added another option putting mine into it, too. I finished all 3 quests. One of the quests wanted me to finish 5 lessons, so that’s partially why I did that. After the 5th one, I got another xp multiplier, so had to use it. I might try to do more than the 3 I usually do. I also got to 2 stories. One they’ve done before and the other seemed new. I don’t like when they repeat. When I was done today, I was 4th in the league. Not sure if I’m still at that spot now.


Rosie’s been using the box often. Sometimes she misses and it ends up on the puppy pads, but she was doing really well for a few days. (Those days doing nothing on the puppy pads.) The happy pills might be helping her. Today, she’s made it in the box most of the time, and a little on the pads.


Had a nice New Year’s Eve at home. We got some snacks for it. Got pickled herring, a cheese ball (thought it would be interesting to try), plain Ruffles chips with French onion dip, dolmas, olives, smoked salmon spread, chocolate covered malt balls, chocolate covered cherries, little slices of rye bread (for things like fish, cheese, etc.), the Hanukkah truffles, and I think that’s it. It was nice. We saw the celebrations from around the world. I fell asleep at some point. We watched the local fireworks too. Had sparkling apple cider to ring in the new year. Kind of like our champagne. Since I don’t drink alcohol. Still trying to eat everything we got, and have the 2nd bottle of sparkling apple cider. Nice to keep it going. 


Pinterest (I did not make these. Just sharing):

Youtube:

Monday, December 2, 2024

2nd of Kislev

I forgot last time to say what happened on getting a new number/card, and more info, on KP. Apparently, they don’t give out new numbers if plans change within KP. Unless you leave the state. All my medical records will transfer over as well. So, no running around trying to get at least my meds onto the new plan. My social worker says it already shows up that I have Medicaid with them. I might not have to worry when I fully change to the new plan. Yay!


I had my last bed bath with a home aide last Tuesday. Normally it’s every Monday and Thursday. She had off on Monday, and Thursday was a holiday. She was planning on trying to squeeze me in for both Tuesday and Friday. I guess Friday didn’t work out for her. She wanted me to friend her on facebook to stay connected. I tried to, but her settings don’t allow me to friend her. So, I messaged her about it. She’ll have to friend me first. It’s a little weird, but she was nice. It’s ok if I don’t hear from her.


I did my own bed bath today. I did it this morning. I used my shower brush for a lot of it. Since it’s hard to reach some areas with my right shoulder. (I broke it in 2020.) I also had wipes that helped. I had my sock aid ready to put my socks on myself. That’s hard to do without it. I still have all the products she used. I ordered them, so I can just order them again when I run out of them. I’ll have to be sure to remember to use lotion. I did remember this time. I’m super dry, and I think she said it’s worse now that it’s close to wintertime. I’m not sure if I’ll do my bed baths more often, or keep it to Mondays and Thursdays. It’s not like I sweat a lot now. Might be different during the summer. I think I got myself cleaner than when she did it. (Got the bed wet in a little area. I'll just try to be more careful and cover that area with the towels more.) I think it took me a little longer. That might get better over time.


Went to Thanksgiving at one of my parent’s friends’ place. It took about 1.5 hours each way to get there and back by car. Kind of a ways. The turkey was really good. The rest of the food was ok. Got to have interesting conversations. There was a couple with 2 children, my parent and I, the hostess’ parents, and the hostess herself. There were supposed to be 10, but it looks like there was just 9 of us. I didn’t know anyone. (Other than my parent, of course.) There was a dog. I think her name was Heart. She had a sweater on that didn’t really fit her anymore. She also had a painful gum issue, I think. The kids were off the walls. Loud and rambunctious. The boy decided to bring his train under the table and play with it. Eventually he started rubbing my legs under the table and put his head out on the side. It was really bizarre and inappropriate. There was also the time when that family was about to leave but the girl got upset, threw her jacket off, and said she was staying. I tried to stay away from them at the end, and gave them as much space as I could. We left so quickly we forgot our utensils for the pies and the bag. (We were leaving the pies behind. We had brought apple and pumpkin pies.) Maybe she can do something up here, and give them to us on the way or something. My parent said we could just buy new stuff and not worry about it. I don’t know if this will turn into an annual thing. It would be interesting if it did. It’s been a while since we were invited to a Thanksgiving dinner with friends. It was nice that way.


Managed to go to both local markets yesterday. I got a smoked turkey and dill havarti sandwich for dinner that night. Cherry crunch pie for dessert. I plan to have a salmon and pesto pasta dinner tonight. It has asparagus and cherry tomatoes as well. I think it’s pretty healthy. I’ll have a Biscoff cookie butter cake for dessert. It’s new and sounds amazing! Didn’t do the lottery tickets because the machine was acting up, and I didn’t want to wait for it to be fixed. Maybe we’ll go back soon.


Didn’t expect to pour cereal all over the floor this morning. I might have enough left in the box for a few days. I tried cleaning it up with a broom and dustpan. Still heard a little crunching afterwards. 


I was going to have a cherry mixed fruit cup with lunch. (I usually have some form of fruit cup.) It was hard to get out of its package. I noticed there was some weird hard brown sticky stuff on it. It was so sticky, I couldn’t open it. The others in the sleeve looked the same, so I had to throw them out. I had mandarin oranges in gel instead. Luckily I have 2 more things of fruit cups besides the orange one. I just feel like I wasted one package of them. It’s not my fault though. There probably was some sort of leak and it got all over the cups. Today’s been weird. 


I managed to get an outside walk in, along with my 2 indoor walks. Tuesday's the start of the last week of my current walk. I'm going from the mailboxes, all the way to the tennis court, and back home. Oh, I also check the mail afterwards, so technically I do go to the mailboxes again. The next one I'll do is twice around that same area. I'm not sure if I can do it twice, but I'll try. Hopefully I can get the last week in with going outside for them. If I don't go out, I do 15 minutes inside. I'll double that when I can't go out with the 'new' way of doing it. 


Oncology called me. I was busy with something so it went to voicemail. They made an appointment for me. This will be to go over the CT scan I'll get done on January 2nd. It's with a different oncologist. The one I was assigned to is Dr. Nik (they shorten it to that), and this will be a Dr. Stephen. Maybe Dr. Nik will be on vacation? (Hopefully he's not leaving too. So many doctors seem to be leaving or moving around.) I hope this one will be ok. Usually they want lab work done like the week before. They didn't mention that this time. I might call them back at some point to make sure.


I plan to get back into anime and Netflix shows. I still have quite a few anime that I haven't finished from a few years ago. The list for what I want to see is long. I have quite a lot on my Netflix list as well. 


Pinterest (again I did not make these. Just wanted to share):

Youtube:

Tuesday, November 26, 2024

26th of Cheshvan

My nurse plans to discharge me from palliative care (pc) this week. My home aide did my last bed bath today. She might come on Friday, we don’t know. Most likely won’t. It’s usually on Monday and Thursday. She had off this Monday, and Thursday’s a holiday. At least I’ll be somewhat clean for the holiday. I have a plan for doing it myself. I might even get cleaner. My shower brush will come in handy. As my home aide was leaving, she said that I can friend her on facebook. She said she doesn’t normally say it, but that would be nice to keep in touch. I don’t know if I will or not. I searched for her, just to see. (I was surprised I found her.) She’s right, she doesn’t do much on there. She might react to things though. She was nice, but it might be a little strange.


My social worker said she’ll call me sometime this week. It’ll be about being in touch with another social worker who deals with cancer patients on Medicaid, I think.


They told me I can still stay in touch and call the pc doctor, even when I’m discharged from it. He never was very good at communicating. He keeps saying he’ll call me but never does. I don’t really trust him anymore. My primary doctor and oncologist would do a better job.


We didn’t get to go grocery shopping for the week during the weekend. We went to Central yesterday. On Sunday, my parent spent much of the day making a kosher Ukrainian borscht. All the meat in it was beef. There was quite a bit of vegetables, too. I think that was the first time I’ve had borscht. It seemed earthy. That might have been the beets. The only thing I didn’t like were the pieces of beef. They were a little too fatty for me. The sausage was good with it. Despite it being skimmed, it also left an oily film on my lips. That’s not a bad thing. It was pretty good.


I thought I was finally getting all my royalties from kdp/Amazon, but apparently some of it already went to the ‘state’ as unclaimed property. This is all on kdp or Amazon. I did what they asked me to do. I feel like they almost stole it from me. Luckily, there’s a claim you can file with the Department of Revenue to see if you have unclaimed ‘property’ or money. I shouldn’t have to give them the document that kdp gave me. The link will apparently disappear in 2 business days. I’ll download it to my computer just in case beforehand. They said I’ll get $33 from the US market. I’m not sure where they got the $33 from, if all of it went to the ‘state’. I got the royalty from the UK today. The $33 they say will be paid on 11/29. This is so weird. The Unclaimed Property Division emailed me back. They had a document of things that were unclaimed to me. Nothing on kdp. (Surprised they had anything.) I’ll try to upload the document kdp gave me to them and see what happens. I’m starting to feel like it’s not worth it… Maybe if I don’t get anywhere with the Unclaimed Division, I can email kdp back. They said I could use the email to reply back, if I needed to.


For Thanksgiving we were told to bring pie. We might get apple and pumpkin pies. They’ll probably be good. I don’t know what else will be there. Hopefully foods I can have. There will be 10 people, 8 adults and 2 children. That’s not too bad. Maybe it’ll be a new tradition to go to this friend’s place for Thanksgiving. The only downside would be how far away it is from home. (I think she said it's in Lacey, which would be about a 1.5-hour drive.) We’ll see how it goes. It’s nice to be with people for it, though. It’s a different experience when it’s just my parent and I and Rosie. Nice but different. I hope the friends we used to visit for Thanksgiving have a good one too.


I managed to do an outside walk today. The weather was good. No rain or wind. A little cold and cloudy, but nice walking weather. A little kid in a van yelled hello as they went past me. That was odd, and looked like the kid was going to fall out of the window.


Rosie’s been good today, but she’s been peeing and pooping outside the box lately. I looked up, with Google’s AI, how to clean up after a cat's mess in the bathroom. It came up with some pretty good suggestions. We’ll see how that goes. My parent might get in touch with Rosie’s vet to see what more we can do about it.


Went to Diablo’s tonight. I got their Diablo’s fries without onions, guacamole, and sour cream. It was like nachos but with fries. It was huge! (Fries themselves were huge!) Very good, though. The fries seemed to have a slightly spicy seasoning. I think I ate around a 1/3 of it. It’ll be a lot for tomorrow’s lunch. Got churros for dessert. Those were good too. 


Pinterest (again, I did not make these, I'm just sharing them):

(The next 2 are from the same house plan. One's the main floor, the other 2nd floor):


Youtube: 


Monday, November 4, 2024

4th of Cheshvan

Had a bed bath today. It went faster than usual. One reason being I got a haircut on Saturday. So, less vigorously washing my hair. She used the dry soap stuff on it. She said I didn’t need the regular shampoo this time. You don’t have to rinse that stuff off. She said it’s good this time considering my stylist washed my hair already. Another reason was I’ve been taking my towels down and back up. Since she’s not doing that anymore, it cuts out some time. It ended up being around 12 minutes.

 

I got up the nerve to call Molina. I was on hold for a little while. Their ‘menu’ before that was awful. It took close to 30 minutes in total. There was a lot of waiting for them to figure out stuff. I can stay on KP (Kaiser Permanente) through Molina, and they switched me to staying on it. Yay! I wasn’t sure if they would let me. I’ll get another card with my primary doctor’s name as my pcp, their address, phone number, etc. I might have to visit her for my meds, etc. to transfer. I forgot to ask about that. There’s still no premiums, copays, etc. Hopefully I did all this correctly. I asked as many questions as I could think of. At least I won’t have to have a totally different medical team/facilities. 


I didn’t think I slept very well last night. However, I got 1 hr 8 min of deep sleep in. I usually get like 20 min at most. 


It was really raining and windy this morning. It’s stopped raining and the wind has died down since. I was nervous that the power would go out earlier. 


I’ll have to go for my walk earlier than before tomorrow, since it gets dark earlier now. I was going out at around 5:15pm. Now it might be around 4pm or so. Today I walked for 10 minutes inside instead. Hopefully I’ll go out tomorrow. 


Pinterest (I did not make these, I just thought it'd be interesting to share. Just some of my most recent pins):



Youtube (obviously did not make these videos, either. Just sharing): 




Sunday, January 8, 2023

15th of Tevet

It's been a long time since my last post. Probably the longest gap in posts. I hope to get back into it. Although, it won't be the same. Interesting using this computer again. 

My last scans were in October. Everything came back fine. No progression, and if I remember correctly, they didn't even see the lung nodule from before. My next ones (CT and full bone) will be next month. I had to call and make an appointment with the infusion center there in order to get the IV in through ultrasound. It seems to be the only way to get it in. They always have a hard time even with that. I'm nervous that they'll find something this time on my CT scan. Had a nightmare where they said the cancer had spread to my liver and lungs. Also, with the full bone scan, that it had progressed. It hasn't progressed in a while. In the dream I had to switch to a chemo that was through an IV. I had to sit there for about 6 hours until it was done. I had weird side effects, too. 

Had an appointment with my primary care doctor in October. Hadn't seen her in-person in about 2 years. The main focus was on recertifying me for insurances through my parent. I'm on her plan as a dependent. They have paperwork for a doctor to fill out. I was nervous, but around the end of December, I got a letter saying I was approved. So, I still get health, dental, and vision through it. The new plan for coverage started this month. The only downside is now there's a copay for all my meds and things. We had met the deductible or something, so we didn't have a copay for a while. I'll probably meet it up again quickly. It's nice they have a special card that covers medical expenses. Although, it's sometimes weird what it considers as medical. It's handy. 

We also talked about my urine incontinence. I know, gross, but it's something I have to live with at the moment. I'll get the urge, and then not have much time to get to a bathroom. It's embarrassing. She suggested that I get pads. I'm still trying them out. Not sure which absorbency is best. I think it feels more 'normal' to try the pads rather than the underwear. Those would feel more like diapers. Not good. She also said I should try going to the bathroom on a schedule. So, I've been trying to do it either before or after meals. It's a little better that way, but I have to remember. 

I also brought up my painful toes/feet. She said I had toenail fungus on every toe except one. It's bad in both my big toes. She tried to clip my toenails for me. She didn't even want to touch my big toes. The toenails are looking pretty gnarly now. My toes hurt a lot as well as the middle of my feet. So much so, it hurts to walk. Feels like I'm walking on hard pointy rocks. I'm walking even less now because of it. My primary sent a referral to see a podiatrist, and I've already made an appointment. That will be the end of this month. Hopefully, they can help me. 

I've been having issues with recurring uti's. The last one was just a couple of weeks ago. I also had one that was in between that and my primary appointment in October. They seem to be happening more often. I went to Urgent Care, like usual, for it. This time they were a lot more thorough. They were surprised about how dehydrated I was. They put an IV in me, after a few tries, and ran fluids and antibiotics through it. They did a lot of blood tests. One of them being for lactate. They had to get it without a tourniquet. It can indicate sepsis. I was high the first time, so they had to do it again. The second time they had to do it on my chest near my left shoulder. That was weird. No other spot was working, though. That ended up even higher. They wanted to do it again because of that. It was just too much, and it was starting to snow a lot. We had to leave. They let me go with a pill-form of antibiotics, and a promise that I'll talk to my primary about it. I don't think I actually had sepsis. I didn't have a fever for one thing.

I had a phone appointment with my primary after that. She suggested some things to help. I thought there were 2 things that I could easily do. That being cranberry and d-mannose supplements. One is supposed to make it harder for bacteria to stick, and one makes it more acidic. Both said helps with cleaning the area. So I got them both. They're huge pills. I had to split the doses up. They wanted me to take 2 capsules of the cranberry and 4 capsules of the d-mannose. I'm doing 1 cranberry and 2 d-mannose twice a day. The d-mannose pills smell really bad. I didn't know they'd also have calories. It's also interesting that they're both put out by Azo. I didn't know they did other meds. So far so good. I don't think I've had another uti. Maybe this is all I need. Although, I have a lot of pills now. I could make meals out of them.

My meds and pain of walking have made me gain quite a bit of weight. It's frustrating. Recently, I decided to go back to the way I used to eat, and doing sit-ups at least. I think I've lost a little bit in the last couple of weeks because of that. The way I used to eat meaning only having 1200-1600 calories during the week, and pretty much whatever I want during the weekend (and holidays). I try to eat 5 meals a day, and want them roughly even. So, 240-320 calories each. I tend to eat less with snacks, and more with meals like dinner. It's a little difficult. It was a bit eye-opening with some things. Plus, I have to be careful with things like bananas that tend to be calorie-packed. I'm up to 10 sit-ups twice a day. Might keep that up for a while, and then do 15 twice a day. I do them a little after I wake up (after going to the bathroom and having breakfast), and when I get into bed just before trying to sleep. I did around similar times the last time I was into it. It's been a while. I also want to get back into walking, but it hurts so much. Maybe with the podiatrist's help I can do it. I want to start off with small walks, and then work my way up to the 2-mile ones I was doing before. At least 2 of those a day would be great. I might get an Apple Watch soon, and that can help a lot with this health stuff. I want to feel better and healthier. 

We've also been into eating out at restaurants lately. I can still do that with the way I want to eat, and probably would be best to do it during the weekends. I'll most likely have more leftovers, but that's ok. We've tried a lot of new ones. Some have been great, others just ok. It's another thing for me to look forward to. (We've also been going to restaurants we haven't been to in a long time.) Oh, Elmer's isn't around anymore. A Denny's moved in. I'm still not used to it. I miss Elmer's. One of the server's from Elmer's is now with Maynard's, a restaurant we tried not too long ago. It was interesting catching up with him. I was surprised he was there. It was ok there. The last 'new' restaurant, or at least new to us, we went to was a Mongolian BBQ place. It wasn't outstanding or anything. I thought it was good. I had the chicken dumplings, which were apparently pot stickers. I got their honey walnut chicken. That was sweet, savory, and smooth. Had little candied walnuts. 

I'm still using Duolingo. I'm studying Spanish through it. It seems so much easier than I expected when I started. I don't particularly like Duolingo's new layout. I don't even think they're sure of it yet. Things keep changing. I liked the way it was before. I've been keeping up with my streak since I did Yiddish. It's like 640 days now. I only forgot about it on New Year's Eve, and they used one of my freeze streaks to keep it going. First time really using that. I think I have like 3 of them. I think that's the max number you can have at once. I try to do 4 lessons, and usually get 100% on it. It's only when it's questionable or unclear when I get them wrong. I've flagged quite a few sentences during this course, because of that. 

I've gotten back into reading as well. You can see how many I finished recently on the side of the blog. Everything from Shadow of the Lions by Christopher Swann up is what I've read since December of 2021. Close to a year ago. That's 16 books. I thought that was pretty good for someone who hasn't been into reading in a long time. 

I'm trying to get back into anime. I started that back up again only a couple of days ago. Before that, it's been since November 2021. Roughly the same time as my last post on here. I'm so far behind. There are so many interesting looking shows that came out in the meantime. I'm not sure how long I can keep up getting back into watching anime now. As it is I might not watch it today. I managed to watch the 1000th episode of One Piece yesterday, I think. I can't believe it's over 1000 episodes now. It'll probably go on forever. 

I've been a lot more into Netflix shows. I've watched a lot, and it's another thing for me to look forward to. I finished 1899 recently. That was interesting. It felt like they were trying to do more with it than they had. Some of it was predictable, but there were a lot of twists. I'm not sure what they'll do with it if there's a 2nd season. I'm currently watching Devil in Ohio. It's just been ok. It has an actress that I like, and am glad she's in something different. I don't remember her first name, but she played the main actress in Bones. She seems more flexible and 'normal' in this. I don't exactly know where this show is going, but it's interesting at least. I'm looking more forward to Wednesday. I liked the Addams Family. Wednesday, Morticia, and Gomez were my fave characters. One on Wednesday seems right up my alley, then.

We've recently been into getting lottery tickets. We've been getting them usually once a week. It's now up to $1.1 billion. I can't imagine even having half of that amount. I've worked out the annuity for some of them, just for fun. (First year would be just over $8 million.) I think if we did win, I'd get half and go for the annuity option. I'll probably not live very long, but I'd still get a huge chunk of money every year. I could pass it on to someone after I die. I don't know who that would be. There's a lot of things I'd be able to do with that amount of money. I could donate a lot, get rid of my student loan debt, get my own nice and cozy house in Seattle, have even better health insurance, and more. 

I wanted to go to a Hanukkah party this year. They were going to have public lighting at a local mall, and then have a party at their synagogue. I hadn't seen people from that congregation in a long time. Plus, their spiritual leader (not quite a rabbi yet) got in touch with me, and wanted me to meet another ace Jew. He was new to their congregation and was feeling really isolated. The 'rabbi' started an email with both of us and introduced us to each other. I responded, but he never did. Anyways, I had another reason to go. The weather was crazy that week. The day they were supposed to have it, there was a lot of snow and ice on top of the snow. Thick ice. Not something we see in this region often. So dangerous, they were telling people not to go outside on the roads unless it was an emergency. They cancelled the party at the synagogue, and thought the roads would still be ok enough for the public lighting. I don't how the lighting was. I wished they just pushed the party to like the last day of Hanukkah. The snow and ice were practically gone by then. They were going to have latkes, donuts, singing, and bags of goodies. I don't know what the bags of goodies would have had, but I'm sure it would have been fun. We didn't have latkes this year. Didn't even have donuts for that matter. I didn't feel very well, and only lit the candles for a few nights off and on. I know it's not a big holiday, but it didn't feel like the usual year for it. I did have some fried things at least. 

It was just my parent and I for our New Year Eve celebration. We used to go to a couple's (friends of the family) place for it. Along with other holiday dinners throughout the year. Ever since Covid hit, they stopped having those dinners. It's felt weird with just us. At least with NYE, we can have whatever snacks we want for it. I got Ruffles chips with French onion dip, pickled herring with Breton crackers, and chocolate covered cherries. I think those are pretty good for NYE. Oh, and of course we got sparkling apple cider. That's like my champagne. I can't have alcohol. At least it's something bubbly. We watched the fireworks at the Space Needle on TV. Before that, it was NYE shows from around the world/country. The fireworks didn't seem that impressive this time. The drones were interesting, but also distracting.