Wednesday, May 27, 2020

4th of Sivan

It's been a while. However, I have a feeling I'll be able to blog more often now. My arm is doing a lot better. Haven't really used my computer since the last time I posted here. I can type normally now. It feels a little weird, but nice. I was thinking of vlogging, and I may still do that. Put out my first vlog about 2 weeks ago. Looked a bit awful because I could only get into my pj's at the time, facial hair was really coming in, and couldn't fix my hair very well. I, at least, had a shower beforehand. It showed how the cancer and broken shoulder thing has affected me, too. 

Yesterday marked the 11th week since I fell in the shower. Tomorrow marks the 10th week since I had surgery to put pins and screws in my right shoulder. I'm surprised at what I'm able to do lately with it. They say the humerus bone, especially with almost a clean break at the head where it meets up with the shoulder, takes one of the longest times for a bone to heal. Since it's one the major bones. I'm not getting much pain from it lately, thank goodness. I've been able to get dressed in my regular clothes since last week, did most of my own laundry on Monday (a little difficult still), trying to eat more with my right hand, able to hold slightly heavier things with it, and more. My orthopedist told me to go slow with things, so I'm trying not to overdo it. It's hard at times, since I want to get back to how things were already. I'll see my orthopedist during the 2nd week of June.

I decided to go back to going to places like the markets lately. Haven't since I fell, and things have changed a lot. Understandably. Since I'm trying to go out to more things and walking more, I started using my cane recently. It does help quite a bit. I just need to practice it more often. I have almost a fear that someone will go up to me and say I'm faking it, but no one has. They just seem pushy, yet wait for me and give me some space. I feel like I have to have it as close to my side as possible, so I don't trip anyone. I end up tripping myself instead sometimes. I really shouldn't care much about this stuff, but it might take time to get over. I forgot to take my cane yesterday to both markets, and I'm feeling it today. For some reason, my right hip is painful when I don't use it. The cane is more for support than anything. My left shoulder pops and cracks a lot, which makes it weird when I use the cane, too. I have to use my left with it. I also have to remember to switch hands when I pick up something. I shouldn't be using my right a lot still. 

I might have my hysterectomy soon. Both the ovaries and uterus. The only reason they postponed it, was because they thought I wasn't healthy/strong enough. I haven't had those attacks in a while. I've also felt much stronger, in less pain, able to do more, etc. I think I'm in the best shape for it right now. The scheduler for their surgeries called yesterday. Told me to call her back even though it'll go straight to voicemail. I left a message. Haven't heard from her since. My oncologist agrees that now might be the best time. Although, we have to time it to me being off of the Ibrance for 2 weeks beforehand. So, that will either be in 3 weeks or a month later. That's not that long of a wait. I might be one of their few patients actually happy about having it done. I don't know what type they'll do, or how long I'll be in the hospital. Don't really care. As long as things go smoothly. Eventually, it'd be great to get top surgery. I'll be rid of the cancer in my breasts, too. I do want it a certain way, so it's probably good I'm not having that part done now. 

I'll see an ear, nose, and throat doc tomorrow. My neck has felt really weird. The left side, from my left ear down to my collarbone to the middle area of my neck, has felt like it's swelling. Sometimes it drains. It's affecting my dysphagia (problems swallowing) a bit, too. I'll wake up in the middle of the night feeling like I'm drowning and coughing. They don't think it's related to the cancer or a tumor, but they don't really know. The ENT doc may also be able to do something about the dysphagia I've been dealing with for over a year. Might be able to look into it more. Probably will order more imaging. I had to be tested again (just nasal, not the one that goes further up, thank goodness. That other one was hellish) for covid yesterday so I could still go to the appointment. Got the results today that it wasn't detected. I have to go all the way out to Tacoma (about an hour from home) for this appointment. I'll need to stop by the lab area to get a blood draw. They have to see how Ibrance is affecting all my blood cell counts. It is an immunosuppressant. At least, since I'll be out there, we might stop by It's Greek to Me afterwards. It's right next to the clinic. 

The dysphoria with my facial hair has been becoming more frequent and harder to ignore. Due to covid, I have no idea when I'll be able to start electrolysis. My 'women's' electric wand-like razor bit the dust. I tried trimming it with scissors, but it does basically nothing. So, I looked on Amazon. Found a 'men's' version that's roughly $30 cheaper than my current one was, has 3 modes, and is rechargeable. My current one was constantly eating batteries. Being rechargeable for the new one, is a huge plus. Hopefully, it'll help me. 

Just for fun, I also looked at monthly subscription boxes. I've felt more bored and drained since the health stuff in March started. It's hard to do much at the moment. So, why not find something to help remedy that and fun? I decided to start one that features a different country's snacks every month. I think I've seen things about it in the past and was curious. It'll be like visiting those places from the comfort of home. I love trying new foods, too. I also found one where they give you 2 hardcover books and 2 ebooks every month under these genres: mystery, horror, thriller, or surprise me. I chose surprise me. I love those genres, and they can pick from any of those for me. I've been meaning to get back into actually reading. I haven't in a while. This will give me a challenge to read every book each month, too. Something to keep me preoccupied. I did see a cat subscription box that looked interesting, but thought that might create too much clutter. It comes with a different theme of toys and treats for them. I suppose we could just toss the ones they destroy or don't care about. Something to keep in mind for the future. 

In order to keep me functioning day to day, I've had to start taking a lot of pills. I counted close to 30 a day. The fentanyl patches didn't work. I switched to morphine for my long-term painkiller instead. I'm still taking oxycodone regularly. It's supposed to be for my 'breakthrough' pain, but I'm nervous to ease up on it. I don't want to go back to being in so much pain. My med team is very understandable about that. I'm taking a stool softener a few times a day, and my bathroom stuff is still weird. At least, it happens. I'm also taking tylenol on top of the other painkillers. That's how bad the pain was. I have to be on 3 different ones. I'm on 2 different anti-nausea meds. They've worked really well together. Hardly ever feel nauseous anymore. I'm taking the Ibrance, tamoxifen, and had a lupron injection a couple of weeks ago. I think the tamoxifen has made my mouth numb. That and Ibrance might have affected how things taste, too. It's just a little off. Like, slightly washed out. Making me crave bolder flavors. Still taking lamotrigine. Keeps me mentally stable, so it's just as important. I'm on a steroid that pretty much stopped those attacks. I'm not sure I like that they increased the dosage. I think it's made me hungrier at times. Started going back to a gummy multivitamin. It's not as important, but I have noticed familiar signs of malabsorption issues, so I figured it wouldn't hurt. I have lost a little weight. Not much, but enough for my med team to take note and tell me I'm still stable, but we have to keep track of it. I wouldn't mind losing a little more. As long as I don't become underweight, that's perfectly fine with me. 

Rosie seems to know exactly when I'm supposed to take my meds, and waits every time near my chair until I'm done with them. I have to take them with food. She already has a thing with getting me to eat at certain times, but staying so close to me when I take my pills and then leaving only when I get up, is new. 

I feel an urge to explore new food or food I haven't had in a long time more lately. It might be the idea/living with metastatic cancer, the meds affecting how things taste, or just wanting to explore more food. Could be a combo. Trying to not overdo it, though. 

I want to start my own sort of cheese tasting plates in the future. I've seen some on pinterest. I wouldn't go over the top with it, especially considering it'd just be for me. I'll be using it more of as a concept. A fun healthy travel from home snack thing. I'll try 3 cheeses each time. I could pick new ones from my cheese guide book I got a couple of years ago. It'd be a handy way to use it. I can go by region or country, or just see what fancies me that time. I plan to choose 3 different forms like soft, semi-soft, and hard. I could use meat like many cheese plates do. Since it would just be me, maybe 1 or 2 types. I could use my rotisserie chicken deli meat, beef lil smokies, beef sticks, chicken sausages, etc. Lots to choose from. Most have nuts, but the only type of nuts I can really have are in the smooth butter forms. Doesn't seem right, so that won't be there. There's usually fresh and dried fruit. It'll be a couple from each. I could have things like fresh strawberries, melons, and grapes. Then, dried apricots, dried pineapple, and dried apples. There will be a couple of veggies like baby carrots, roasted red bell peppers, and shredded cabbage. A couple of salty/acidic things: olives, dolmas, pickles, pickled cabbage. One type of cracker and one type of bread. Finally, a spread of some sort like hummus, fruit spread, honey, etc. Some people add garnishes, but I don't really need that. I could try new things for the other stuff besides cheese every time, too. That would satisfy trying more stuff. A little bit of everything does sound like it'd be healthy. Especially with another way of getting more fruit and veggies. Seems balanced. I'll have multiple sit-down ones, considering it'll just be me and it can take a while to finish 3 cheeses. I might start this sort of thing when I'm finished with my current cheeses. I've got a provolone and garlic and herb Boursin cheese at the moment. First time I've tried Trader Joe's version of the provolone, and it's ok. Huge slices, and it smells like it should. I'm not too into smelly cheeses, though. Not sure how long I'll be able to stand it. Although, like I said, it is decent. Maybe having it in other things would be better. I'm thinking of my 'starter' cheese plate cheeses as ones I know and love. For instance, maybe mozzarella, Dubliner cheddar, and an aged parmesan. Although, I'm not used to hard non-shaved parmesan. So, that will still be a little different. 

I'm trying to get back into my writing stuff. I entered all 5 ebook versions of my books in the Authors Give Back promo on Smashwords. That was extended to the end of the month. It's a way for things to be more affordable and brighten someone's day during the pandemic. I set them to 60% off. There were 30%, 60%, and 100% off options. I don't think I'll have my old books set to free ever again. It's just been too often, and I feel I really need to actually make something from them. Discounts are totally understandable. People are looking more at them both on Smashwords and Amazon lately, which is great. I want them to be noticed even more. Thought about entering a book into Amazon's UK storyteller awards. Any book that's in English is eligible, however it had to have been put out in the last year. Mine are too old, sadly. Oh well. I started up my author instagram account again. Been reading the paperback version of Alliance for the 1st time. That's been an interesting way to see it. Still feel the print is a little too big, even with my eyes having issues lately. (I really need an eye exam and new contacts soon.) I plan to try to read through all my paperback versions. Although, that might be a little more difficult if I take on those monthly books I'll get in the mail. Hopefully, I can get back to finding and writing down quotes from my books. Haven't been able to focus that much lately.

I also am trying to get back to learning Polish through Duolingo. I've remembered a lot more than I thought I would. It still is hard to focus very long on it. It'd be great if I can get to the point of practicing my clarinet again. I might be able to do it for short periods of time now. I'd love to get back to drawing, too. I just should try to pace myself. If I do too much one day, it'll take a while to get back to things. I hate that. I even just want to get back to my walks. One day at a time.