Monday, October 5, 2020

3rd Day of Sukkot

I can't believe it's already Sukkot. Sukkot (singular: sukkah) lit. means booths, and are temporary walled structures that we build and 'dwell' in during the holiday. It's a harvest festival that lasts for 8 days. It's supposed to be one of the most joyful holidays. People eat and sometimes sleep in their sukkah. We used to put up our own. It just ended up being too much of a hassle to put up. Really needed more than 2 people to put it together, and we stopped asking people to help us at some point. The wood, I think, ended up rotting and couldn't be used anymore. It was nice when we had it up, though. Like what's custom to do, we had guests or ushpizin over for dinner in it for the first few nights. They were usually our neighbors and were not Jewish. That was fun, and they seemed to enjoy it, too. Now, with covid, it probably wouldn't be wise to do that. We usually ate almost every meal in the sukkah. It was interesting eating outside like that. 


This is my wallpaper for October. It's Overhaul or Kai Chisaki from Boku no (My) Hero Academia. He was the main villain of the anime's 4th season. He was also the boss of a yakuza group, not related to the League of Villains. I think he was one of the best villains of the series so far. He wanted the world to go back to the way it was before Quirks or powers. He was cruel to the yakuza's boss' granddaughter, Eri. Using her blood in special bullets that takes away the victim's Quirk. It doesn't necessarily kill the person, but if they're a pro hero, they'll feel like their livelihood was snatched away. I think there were bullets that also enhanced Quirks, and he used them on his own underlings. The problem with that was sometimes it enhanced them too much, and the power was too great for them to handle. So, they'd go crazy. Thought this seemed somewhat Halloween-like. There's another season coming up, but it won't be until Spring of 2021. Kind of a while. It'd be great to see what happens next. 

The month-long holidays for October are: National Apple Month, National Caramel Month, National Cheese Month, National Chili Month, National Cookie Month, National Pasta Month, National Pretzel Month, National Seafood Month, American Pharmacists Month, Bat Appreciation Month, Breast Cancer Awareness Month, Corn Month, LGBTQ+ History Month, German-American Heritage Month, National Cookbook Month, Pizza Month, Polish-American Heritage Month, Sausage Month, Spinach Lovers Month, Talk About Medicines Month. Some are for important causes, some are to make you appreciate things you may take for granted, and some are just for fun. There are a lot this month. I don't think pharmacists get enough credit. Without them and the meds they make, I wouldn't be able to function. They should be celebrated for the hard work they do. I'm part German, and not that long ago found out I'm part Polish, too. It's good to recognize the history of the LGBTQ+ community. 

Like I mentioned, it is Breast Cancer Awareness Month. Metastatic or stage 4 breast cancer, which is what I have, doesn't get much in the way of awareness or funding for research. Most of the focus is on the early stages. The ones you can 'beat'. There's no cure for stage 4. The scary thing about that is people are more likely to have it come back as stage 4 after they're 'cured'. They have that forever looming over them. I added an awareness ribbon to my facebook frame for the month. The ribbon is green for spring and the triumph of life over death, pink for the cancer originating in the breast(s), and teal for healing and spirituality. People aren't expected to live very long after being diagnosed with stage 4. About 27% are alive 5 years after diagnosis. 11% after 10 years. I hope I can live much longer than that. (And, that the quality of my life is good.) The stats are old, things have advanced since then, it all depends on what type of breast cancer, etc. Many factors. I'm lucky mine's not triple negative. That one has the worst life expectancy. Mine's er+, pr+, and her2-. Another way of saying it is positive for both hormones and negative for her2. Mine tends to be mixed with how long people tend to live with it. I also don't know much about other people who have it as infiltrating ductal carcinoma or IDC. It's one of the most common types, though. There's a lot to it. 

It's been a while. I think it's the first time I actually didn't post during a month. I might try to get back to doing this on a regular basis. In order to help with getting back into things, I decided to make a schedule. Not with my Google calendar, but in my Notes on my iPhone. That way the times can be easily flexible, and I can put something else in the time 'slot' if I wanted to. It worked pretty well yesterday and, so far, today. It's kind of fun to check off things again on there, too. 

Had a shower today. A couple of weeks ago, there was an issue with it. I was supposed to get one on that Monday. Sometimes, if my home aide forgets or something, I have one on Tuesday. That would have been fine. However, no one showed up for either days. Wednesday afternoon, my palliative care nurse, Brian, called. I told him about the showers, and he seemed upset about it and called Home Health. He was able to get me an appointment for that Friday with someone I didn't really know. Luckily, my usual home aide, Savannah, came that day instead. (Normally the 2nd day is on a Thursday.) Apparently, she was sick most of that week, and assumed they would find someone to see me while she was out. She said that's the usual procedure. Nobody followed up on it, though. This is one of the only things that I've had issues with, which is that unpredictability. I wish it was more set. Even the times during our usual days change. She tries to keep it around 11am most of the time, but sometimes it's much earlier or later. I'm glad I at least get them most weeks. I kind of wish that I could have one more day than the 2 I get, but it's not bad. 

I'm taking 2 chemo meds now, Ibrance and Arimidex. I've been getting more side effects lately. I thought I wouldn't get this one, but I'm loosing my hair. It seemed to take a while. Maybe for me to notice it. It's coming out in clumps. I've decided to have most of it shaved off. It'll be a drastic change, but that way I can be more in control of it. The earliest appointment my hairstylist had was for the 28th. I wanted it sooner. Not sure what my hair will be like by then. I'll tell her about the cancer stuff, too. It might shock her, but hopefully she'll understand why I'd want it shaved. I don't want to be completely bald, just have a little there. I plan to wear knit hats instead of wigs or scarves like so many other cancer patients do. They'll keep my head warm this way. I ordered 7 of them on Amazon. I have 4 of them so far. They all fit pretty well, even with my long hair. I might wear them on a regular basis, if it gets to be too much with the hair loss. The other major side effect I've had has been fatigue. I just feel so wiped out most of the time. 

We had a plumber look at both toilets, since mine and the one downstairs were acting up. There's only one other toilet in the house. That being my parent's. It felt weird having to use it. I don't know what I would have done if I needed to use it in the middle of the night. I wouldn't want to wake her. Supposedly, they are both fixed. However, the plumber said the one downstairs is old and will need to be replaced with a new one soon. It's always had issues, so makes sense it needs to be replaced. He said he could install the new one for us. I'm glad I can use mine again, but I don't trust that downstairs one. This means I'm still going up the stairs to go to the bathroom. That's dangerous for me. They (the palliative care team) want me to stay downstairs most of the time. There's less of a risk of me falling and easily breaking bones that way. I still need to go up them for things like showers and getting dressed. My computer's up there, too. 

Managed to get an hour of reading in today. I'm trying to go through those 6 books I got from My Thrill List. I'm reading a different one every day, so I don't feel stuck on one. Today I read A Noise Downstairs by Linwood Barclay. Got through a good chunk of it. I think it's one of the better of the 6. It'll be interesting to see how it plays out. 

Haven't studied Welsh through Duolingo in a long time. Finally got back to it. Surprised I managed to remember as much as I have. It was enough to open another unit or checkpoint. Hopefully, I can keep it up this time. 

Got back into looking for quotes from Alliance. I haven't done anything related to writing/my books in a very long time. In fact, the last time I searched for quotes from it was back in February. I hope I can keep this up. I was almost done with looking through it. I just need to finish looking through what little is left, then move on to Alliance: Dawn. Hopefully, I can go through all the books I'll look for quotes in quickly, and then move on to other things. For instance, making an author card, drawing things relating to some of the books, making trailers, deciding on which recipes to show in the trailers, etc. Fun stuff.