Sunday, April 5, 2020

11th of Nisan

A lot of things have happened since my last post. This is the first time I've probably been on my computer since at least March 10th. That's when I fell in the shower. My feet slipped, face-planted hard on the floor of the tub, slammed my right armpit hard over the edge of that tub (I think I was trying to break my fall), and bashed and bruised other areas. It took me a while to collect myself while I lay in the tub. Came super close to passing out, and saw 'flashes' of black. Then, I noticed I couldn't move my right arm and it was in extreme pain. I also couldn't get out of the tub. My parent said it sounded like a huge tree had fallen and asked how I was. She was able to get into my bathroom, see how I was, and called 911. The paramedics took a while trying to figure out how to get me out of there. Meanwhile, it was a bit embarrassing, since I was naked. They wrapped straps around me, and then pulled me out with a little help from trying to push myself up. They got me to my feet, put a sling on my right arm, helped me with putting on my pj's (at least draping the top over that arm), and whisked me away by ambulance to the ER.

I had broken my shoulder. More specifically, the head of the humerus bone where it meets up with the rest of the shoulder. It was almost a clean break and pushed in. Ended up with a nasty bump on my forehead, but with the amount of force, I thought it would be worse. 3 days after the fall, my feet started to swell. I thought it was a reaction from the prescription-strength Ibuprofen (it was only my 3rd dose of it), and stopped it. I elevated it often at some point (hard, since my knees still hurt from the fall), and the swelling got worse in my feet and traveled up to my kneecaps. Was like that for 3 weeks.

Had surgery on March 19th. That was to put the bone back in place, and hold it together with a metal plate and screws. Eventually, new bone will grow over the plate and screws, forming the way it should. They wouldn't allow my parent to go back with me for the pre-op stuff, which not only made it difficult emotionally, but she also had the specialized sling they wanted us to get beforehand, so right after the surgery part the nurse can put it on while I'm still asleep with the anesthesia. Eventually, they did allow her to give the sling to them, and met me in the recovery area. They weren't even going to allow her that. The hospital was so empty and quiet. Added to how I felt. Everyone there was pretty worried about my swelling, but the nurses more so. They decided to put some sort of massaging sleeves on both legs before the surgery. When I woke up, I had the worst leg cramps I can remember. The nurses looked nervous about it, but didn't do much. The nurses in the post-op area weren't as great. Especially one of them that didn't seem to know what she was doing. It was agonizing. 

Had the post-op appointment with my orthopedist on April 1st. He said everything was healing wonderfully. He gave me a printout of one of the x-rays they took that day, and a cd-rom of all the x-rays they've taken. I thought I wasn't doing enough, or behind, or something. I had only started the phase 1 exercises 3 days after the surgery. Same day I had to take off the dressings. It was easier that way. Couldn't do all 4 of those exercises together until a few days after that. He felt that I was on the right track. I shouldn't rush it, and if I push it too hard, I could damage the area. It'll take about a year to fully recover. Even then, it won't be as strong as it was. Right now, it seems my left arm has gotten stronger, since I've been using it for most things. At least, my right shoulder is getting better. He took off the steri-tape that was over the incision, too. It's around 6" long. A little bigger than I thought it'd be.

Went to Urgent Care the day before. I was seriously fed up with the swelling. Made it hard to move, sleep, and was really uncomfortable. At this point, it felt like my toes would fall off. It was that bad. When I moved, I had burning pain. Felt like a nasty sunburn on the tops of my feet. Anyways, I was there for 4 or 5 hours. They were being very thorough. With the new coronavirus regulations, they couldn't allow my parent to be there with me. That was difficult. 

They couldn't do anything for the swelling, since they didn't find a cause. There were no blood clots, kidneys were fine, etc. I was pissed about this. The one thing I came in for they couldn't do anything about. 

However, they found a lot of bone lesions on my ribs, left scapula (aka shoulder blade), pelvis, and I think spine. These only occur when there's cancer (pretty much any kind) or some sort of autoimmune disease. Pretty scary. They usually show up in older people. Since I have a family history of breast cancer (my mom had it, as well as grandma and one aunt on that side), they want to rule that out first. I have a mammogram and ultrasound scheduled for Tuesday. If they find something in those, they want me to schedule a breast biopsy on the same day. If not, the next step is getting a bone biopsy. That'll be from the areas affected. Scapula might be best, since it's close to the skin and there are less nerves. It'll be guided by a CT scan, I think. I'm terrified of this one. It's bad enough that my chest triggers a lot of dysphoria, and I'm a little too young to have a mammogram. I know it's essential, but I'm going to have a hard time. I'll have a full bone scan at some point, too. That sounds like an interesting one. I'll probably see an oncologist soon. Had a CT scan the same day as my orthopedist appointment, just to look at my chest and abdomen area. Made for a tiring day. 

At Urgent Care, they also found some pleural (lung lining) thickening. That doesn't just happen, either. I've had 2 lung issues in the past: pneumonia and pulmonary embolisms (blood clots in every air sac in my lungs). So, anything relating to them scares me. My D-Dimer was really high. I've learned from my doc that it could mean many things. My alk phos was high (although not as much as the other test). That usually has something to do with the liver. I have a thyroid nodule and gallstones. Those gallstones have probably been there for roughly a year. Went to the ER at the time for throwing up blood, and they found them then. My doc said since my gallbladder's walls aren't thickening, and doesn't seem to be bothering me, they're not going to worry about that now. There were no lymph nodes in places they shouldn't be. 

I suspect at least the lesions had something to do with both the fall and broken shoulder. Those lesions make it easier to break bones, and can weaken certain areas making it easier to slip. The weird pain and difficulty getting out of bed the week before my fall could have been from this. From what I've read, it sounds an awful lot like the common symptoms for it. I love how they're taking me seriously now about things. They weren't for the last year or 2. 

I feel super lucky that the fall happened when it did. I was approved for health insurance the day before, and got the card that night. The schools were (still will be for a while) closed and my parent, who's a school psychologist, had to work from home. Spring break technically starts tomorrow, I think. She's available to help me get to appointments and things, especially now. A lot of these tests/surgery are being labelled as urgent, otherwise they won't be able to do them until their system goes back to normal. My primary doc and the one I saw at Urgent Care want to push for these tests as fast as possible, so whatever it is doesn't progress.

The possibility of cancer also seems personal to me. My mom passed away from complications of both metastatic breast cancer and liposarcomas or abdominal tumors (2 huge ones, one right after the other). I saw what she went through. I don't want that. Creeps me out if it's some sort of bone autoimmune disease. 

I managed to finally go upstairs and sleep in my own bed Friday night. I had been sleeping in the recliner downstairs since March 10th. It was so nice to finally sleep there, and start using my bathroom again. The swelling has been going down a lot since then. Almost gone from my legs. They're sore, though. Might be from it being there for so long. Feet are better, but there's still a lot there. I can at least feel my toes. 

I haven't been able to get to much of my usual stuff because of all this. It's really been life changing. Trying to stay positive. Hard sometimes when I can't do much on my own. Might be able to take a shower soon. My orthopedist said it's ok to. I just would like a shower chair first. My parent, not long after the fall, put anti-skid strips on the floor of the tub. With both that and the chair, I should be pretty secure. 

Tasha has taken over my bed, and she was very upset when I started sleeping in it again. Interesting that she glomped onto it when I was gone. For the first few nights, she kept nudging me with her big paws and running around while I tried to sleep in the recliner. Rosie's been sticking to me a lot more. I think she's been trying to heal me. She knows somethings going on.